Our Charity Partners
We are honoured to stand alongside a remarkable network of charity partners who bring lived experience, advocacy, and heart to the centre of INDConf LONDON 2025.
These organisations are tireless champions for individuals and families affected by neurotransmitter disorders — driving awareness, building community, and helping to shape the future of care through collaboration and storytelling.
To our charity partners: thank you.
Your voices and your vision are at the heart of this conference.
Throughout this page and across our social platforms, we’ll be highlighting the incredible impact of these organisations and the communities they represent.
Stay connected as we celebrate their work and share updates, features, and patient-led stories.
Charity Partner Spotlight...
The AADC Research Trust
We are honoured to spotlight The AADC Research Trust, a global charity founded in 2006 by families, for families, affected by Aromatic L-Amino Acid Decarboxylase Deficiency (AADC-D) — one of the world’s rarest known neurotransmitter disorders.
For nearly two decades, the Trust has been a lifeline for families across more than 30 countries, offering hope through advocacy, research support, and care resources. Their mission: to improve diagnosis, treatment, and quality of life for every child impacted by AADC-D.
The AADC Research Trust has played a pivotal role in accelerating gene therapy development — supporting international clinical trials and compassionate use programs that led to the first approved gene therapy for AADC deficiency in Europe and the U.S.
As a committed voice in the rare disease space, they continue to unite scientists, clinicians, and caregivers — driving global awareness, knowledge-sharing, and tangible progress.
At INDConf LONDON 2025, we proudly stand with the Trust in the shared belief that collaboration changes everything.
Hrabrisa (Lil Brave One)
We are proud to partner with Hrabriša – lil’ brave one, a Serbia-based non-profit organisation dedicated to supporting children affected by rare congenital neurotransmitter disorders, including AADC deficiency.
Founded by parents, Hrabriša leads with empathy and impact — building awareness, translating resources, and advocating for timely diagnosis and treatment in non-English-speaking communities. Through their commitment, they’ve helped families access life-changing care and global expertise.
In 2024, Hrabriša was awarded a prestigious grant from the Chan Zuckerberg Initiative’s Rare As One Network, recognising their leadership in the rare disease space and supporting their mission to amplify underrepresented patient voices on a global scale.
Their tireless efforts embody the heart of INDConf LONDON 2025: collaboration, inclusion, and community-powered progress.
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